Mother Jones reports on an unprecedented effort of a family to deal with their children's congenital defect by patenting the gene for the disease. "The Terrys have gained something no other family or patient group now has: a way to make sure that the genetics revolution benefits those with the most at stake," the magazine reveals. The story examines a recent pattern of genetic patents impeding new science developments, and looks at the efforts of various nonprofit groups to run their own scientific programs, funding researchers directly.
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